tirsdag den 10. april 2012

Kids need a Truce not a War! Especially Twice Exceptional kids.

Ask any Twice Exceptional child and they will tell you how much they love to participate and have fun. Ask their parents how finding an inclusive school setting works, they smile "it takes work".
Ask teachers how they include and you hear how hard they work at making the kid fit.
Ask administrators and they say resources solves it all.

When any Twice Exceptional child tells their story, if they can find the words or have experienced true inclusion so they see there is a difference and have felt true school accept you hear hair raising stuff. It's not just in your country, it's a Global problem!

The diversity of the Twice Exceptional community complicates diagnosis and treatment! Political agendas and plans enforce complicated rules. Professionals often agree to disagree - slowing the progress to a standstill. Parents do not have the knowledge and experience, and often they by some miracle, make the impossible work!

How can we make a single something to unify us all? How can we include the children while we try to understand the adults? Children do not have time to wait - they have a World that needs exploring in a safe and productive way.

We need one place, one way, one Nationally recognized system reaching out Globally to organize ourr stories, good and bad, while simultaneously strengthening each unique sub-community. Sharing the valuable skills and lessons Twice Exceptional kids, parents and their caregivers have gained so we make it available for future generations.

We do not need We need the equivalent of a cancer registry for people with disabilities. Families, therapists, clinicians, researchers, and educators already learn from each other in meaningful ways regardless of their funding or geography - Internet is changing things fast. Some Teachers, Parents and other professionals "already" share their knowledge and help where they can. There we do not discuss the problems we read, talk and teach solutions.

Policy makers get busy with that! Find better ways to unite resources.  We have kids to HUG!

Hug O’ War

(Shel Silverstein )
I will not play at tug o’ war
I’d rather play at hug o’ war,

Where everyone hugs

Instead of tugs

Where everyone giggles

And rolls on the rug,

Where everyone kisses

And everyone grins

And everyone cuddles

And everyone wins.

I would like to thank Denise A.Somsak for taking her time to write "Kids with Autism Need a Truce not a War" on http://www.pensivepediatrician.com and will follow her on twitter: 

@Dr_som Candid, self-deprecating, idealistic pediatrician learning social media. Family before iphone, coffee before work, rain over sun, face to face over Facebook.

Please read her article! It's very insightful and the building blocks for this blog post. No parent, administrator or caregiver can miss her message! Let's learn from eachother and hit our keys, together:

Policy makers get busy with that! Find better ways to unite resources.  

We have kids to HUG!

It all started with me again opening my Facebook wall and seeing an excerpt from it discussed. Networking there has opened a new world to me.
 "What we call autism is likely many different disorders: Asperger’s, Autism with a known genetic syndrome, Autism in a syndromic looking child whose genetic testing is normal, autism with normal IQ, autism with high IQ, autism with low IQ, autism with many medical problems, autism with no medical problems, autism with other psychiatric co-morbidities, autism with aggression. Any reasonable outsider can see that this is not the same disorder, so why do we keep talking about it like it is?" Please the original article!
As per usual loads of posts gave another insightful paragraph:
Catharine Vetter Alvarez I think it's an artifact of conceptualizing mental disorders as sets of abnormal behaviors. Just as a fever can be a symptom of more than one disease, these behaviors can be symptoms of more than one disorder.

Jumping back to the original article I realised I focus differently and realise what an insightful article it was, when it it read as a parent, caregiver or administrator.  So moms, teachers and policy makers - take some time and see how people changes the lives of Twice Exceptional Kids. They need a broad understanding.

Welcome. The Brain Cafe is a gathering place for those fascinated by the human brain to meet, share, discuss, pontificate, and even blather on about the brain. I envision it as a place where neuroscientists, bloggers, psychologists, researchers, professors, students and passionate amateurs alike can freely exchange ideas. I ask only that you do so with respect for all the cafe denizens.

Rebecca McMillan, Founder
Just because they care to share, in order to talk about what makes a difference for them - realtime learning! Find your group and it's subgroups so you can learn from the experiences of others. Use email, Facebook, Blogs ... you will be surprised how much you can learn! Don't be shy to connect with people. They'd rather have your input, than not - to make their cause heard - and your cause might just be the one they have been waiting for!

And again: To all of you that have helped me rant and rave, Thank You!

Twice Exceptional Denmark

Twice Exceptional Denmark er lavet for dobbelt exceptionelle børn dvs. børn med særlige forudsætninger som samtidig har indlæringsvanskeligheder. Disse børn kan have opmærksomheds-, koncentrations- og kontakt- vanskeligheder som oftest er pga. Ordblindhed/ Dyslexi, ADHD, AS, PDD NOS, OCD, Tourette osv.

Det ofte set at Børn med særlige forudsætninger er af natur Asynkron Udviklet dvs. det halter med at deres emotionelle og sociale udvikling følger med det som ses ved jævnaldrende, samtidig med at de lærer lynhurtigt det emner de er motiveret for og ender således ofte foran jævnaldrende i disse oråder, uden sparringspartner. Børnene ender ofte meget ”misforstået” og en tværfagligindsats er nødvendig hvis sådan en situation skal kunne vendes.

Tværfaglighed bør bestå af en BMSF konsulent/psykolog og derudover specialister jvf. barnets specifikke diagnoser og andre problemer hver gang handleplaner udarbejdes, barnets evalueres osv. Men der er langt vej endnu, da BMSF ikke anerkendes i Kommunerne, og dermed overses det at barnet har behov for en ”særlig” forståelse og indsigt for at børnene kan få den rette hjælp jvf. Socialloven og Inklusion.

Men desværre ses disse børn i AKT forløb, heldagsskoler og kan ende i Udsatte grupper:

De unge, som kommer til opholdsstederne, har været vanskelige at placere i de kommunale tilbud, hvor hverken de unge, som kommer til opholdstederne eller de elever, der går i de kommunale tilbud, vil profitere af at være sammen.